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General Information

Locality: Bohemia, New York

Phone: +1 718-274-3800



Address: 80 Orville Dr, Ste 100 11716 Bohemia, NY, US

Website: www.lgsfoundation.org

Likes: 92512

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LGS Foundation 07.11.2020

Tom Cavanagh from the hit TV series The Flash explains seizures in Lennox-Gastaut Syndrome (LGS) and how you can help those affected. Raise your Voice for LGS Awareness. Join us this Sunday, November 1st for International LGS Awareness Day. For more information or to get involved visit www.lgsfoundation.org/lgsawarenessday https://youtu.be/x2J93Bmrn1w

LGS Foundation 31.10.2020

Tony Adkins aka "The Dancing Doc" talks about life with Lennox-Gastaut Syndrome (LGS). Please join us tomorrow for International LGS Awareness Day as we come together to support one another and celebrate our amazing community with an LGS Awareness Day Concert Benefit. Tickets available @ www.lgsfoundation.org/lgsawarenessday... Ticket sales close Oct. 31st @ 5pm EST. https://youtu.be/3jpPnlhYla4

LGS Foundation 24.10.2020

Happy Halloween from all of us at the LGS Foundation. #HappyHalloween #TrickorTreat

LGS Foundation 07.10.2020

Let's raise some funds for #LGS Research. Silent Auction is open!! Hope you can check it out! givegrove.com/lgs-foundation/

LGS Foundation 20.09.2020

Can’t go trick or treating? Have a haunted Halloween hunt... Enjoy the fun of Halloween (with a twist) right from the comfort of your home. Share your loved one’s costume photos with us and any other fun creative ideas you have come up with to help create a sense of normalcy during these uncertain times. #HappyHalloween #adaptivecostumes #halloweenhunt

LGS Foundation 15.09.2020

Join us Sunday, November 1st for International LGS Awareness Day as we come together to support one another and celebrate our amazing community with an LGS Awareness Day Concert Benefit. Tickets available @ www.lgsfoundation.org/lgsawarenessday Ticket sales close Oct. 31st @ 5pm EST. ... Event made possible with support from Eisai.

LGS Foundation 03.09.2020

Only a few more days left to get your bids in for the LGS Foundation Silent Auction. We appreciate your participation and are hopeful you will invite your friends and family to join as we raise awareness and crucial funds to help improve the lives of those affected by Lennox-Gastaut Syndrome. The Silent Auction is open to ALL. The auction will close on November 1st @ 7pm EST. Winners will be announced at the LGS Awareness Day Concert Benefit and will be notified via text me...ssage. Presence at the event is not required, although you won’t want to miss it. https://givegrove.com/lgs-foundation/silent/

LGS Foundation 28.08.2020

Special Shout Out to all of our amazing sponsors for their support of the LGS Awareness Day Benefit Concert. Join us Sunday, November 1st as we celebrate and raise awareness for all those affected by Lennox-Gastaut Syndrome, their families, and our amazing community. Tickets available @ www.lgsfoundation.org/lgsawarenessday

LGS Foundation 10.08.2020

Sharon Lawrence from NYPD Blue talks about Lennox-Gastaut Syndrome (LGS) and how to get involved and make a difference. https://youtu.be/5Ylr7zb6PTE Please join us for International LGS Awareness Day this Sunday, November 1st as we raise awareness for this devastating disorder. ... For more information visit www.lgsfoundation.org/lgsawarenessday

LGS Foundation 27.07.2020

We are so excited to announce that comedian, author, and podcast host, PAULA POUNDSTONE will be our guest emcee for the International LGS Awareness Day Benefit event. Join us on November 1st as we come together to celebrate our community and raise awareness for all those affected by Lennox-Gastaut Syndrome! For more information please visit www.lgsfoundation.org/lgsawarenessday

LGS Foundation 19.07.2020

**LGSF Silent Auction Now Open** The LGS Foundation is thrilled to invite you to join us this week for a Virtual Silent Auction. The auction will remain open until Nov. 1st @ 7 pm EST https://givegrove.com/lgs-foundation/silent/... All are welcome to join in on the fun! Whether you are looking for a new TV or gifts for the family, we have you covered. Check off that holiday list while supporting the LGS Foundation’s mission to improve the lives of those affected by Lennox-Gastaut Syndrome.

LGS Foundation 02.07.2020

Come take the night off... Relax and enjoy the music as we celebrate and raise awareness for our loved ones affected by Lennox-Gastaut Syndrome. Get your tickets for the LGS Awareness Day Concert Benefit featuring singer-songwriter, former Glee Cast member and America’s Got Talent alum, Noah Guthrie. Tickets Only $20.20. ... Tickets available @ www.lgsfoundation.org/lgsawarenessday Event made possible with support from Greenwich Biosciences.

LGS Foundation 13.06.2020

Join us Sunday, November 1st as we kick off epilepsy awareness month with an International LGS Awareness Day Concert Benefit. Join hundreds of families from around the world as we come together to raise awareness and crucial funds to help support families affected by Lennox-Gastaut Syndrome a rare and catastrophic form of epilepsy. Tickets available @ www.lgsfoundation.org/lgsawarenessday... #lennoxgastautsyndrome #lgsawareness #lgsfoundation

LGS Foundation 08.06.2020

Today is SUDEP Action Day and my friend Paula Poundstone is helping us talk about it. Please consider joining is on Nov 1 for our virtual benefit concert to benefit LGS Foundation and all of us that live with horrific seizures every day. Tickets are available on the LGS Foundation website. Join us for some fun as we raise money for a cure.

LGS Foundation 01.06.2020

Comedian, Author, Paula Poundstone talks about LGS (Lennox-Gastaut Syndrome) and SUDEP (Sudden Unexpected Death in Epilepsy) https://www.youtube.com/watch?v=EEsRAeXtF3o