HDSA Utah Chapter

HD AWARENESS MONTH IS ONE MONTH AWAY! In just one month we will turn up the global volume on #HuntingtonsDisease awareness & we need your help! Share your stories, pictures & videos on social media using #LetsTalkAboutHD & together we will make sure the world hears our stories. LEARN MORE AT http://hdsa.org/this-may-letstalkabouthd/... #HDSAFamily

Disappointing Update from Wave Regarding PRECISION-HD Clinical Trials READ COMMUNITY STATEMENT: https://hdsa.org//HD-community-letter_PRECISION-results-fi #HuntingtonsDisease #LetsTalkAboutHD #HDSAFamily

A Message from Roche about the GENERATION-HD1 Trial News WATCH: https://www.youtube.com/watch?v=1_CnfL8CIe8 #HuntingtonsDisease #LetsTalkAboutHD #HDSAFamily

GENERATION-HD1 RESEARCH WEBINAR THURSDAY, MARCH 25TH | 11AM (ET) REGISTER: https://hdsa-org.zoom.us//regist/WN_eTXCp8LYRkujXkuWA8i4og Please join us for a discussion of the recent disappointing news that the Roche/Genentech Generation-HD1 trial has stopped dosing its drug (tominersen). Jennifer Simpson, LCSW (Assistant Director of Youth and Community Services at HDSA), George Yohrling, PhD (Chief Scientific and Mission Officer at HDSA) and Vicki Wheelock, MD (HDSA Center o...f Excellence Director at UC-Davis and Site Investigator for the Generation-HD1 trial) will participate in the discussion and take questions from audience. #LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily

Roche provides disappointing update on tominersen. HDSA will continue to get more information to share when it becomes available. Read Community Statement: https://hdsa.org//Tominersen-programme-update-Community-le #HuntingtonsDisease #LetsTalkAboutHD #HDSAFamily

Today is #GivingTuesday, please support the fight against #HuntingtonsDisease by visiting https://app.donorview.com/7lQ3Z #HDSAFamily #LetsTalkAboutHD

On #GivingTuesday, people all around the world are coming together to tap into the power of human connection, strengthen communities and change our world. Will you be one of them? Support the fight against #HuntingtonsDisease by visiting https://app.donorview.com/7lQ3Z #LetsTalkAboutHD #HDSAFamily

Start your Cyber Monday shopping with us! Visit our online auction. All proceeds benefit our HDSA Utah group. Bidding ends December 16th, 9:00 am. Place your bids HERE: https://app.donorview.com/zAxkO

Avoid the crazy Black Friday super-spreader event! Instead, begin your holiday shopping online with our HDSA auction. Auction starts Black Friday, November 27th at 6:00 am. Bidding ends December 16th 9:00 am. Click here to begin your shopping: https://app.donorview.com/zAxkO

Happy Holidays from the #HDSAFamily! In the fight against #HuntingtonsDisease - FAMILY IS EVERYTHING! #LetsTalkAboutHD... "Family" by Drew Holcomb & the Neighbors