Hunter's Hope Foundation

Our partners at the ALD Alliance are working with lawmakers to secure federal funding to help increase the number of diseases every state screens for through newborn screening. Ask your lawmakers to help by requesting that they sign on to the appropriations letter by TOMORROW, April 16th. Find out more:... https://www.aldalliance.org/legislative-action-for-newborn- See more

Let me introduce you to precious Ella McKee. She is on our Wall of Fame. Ella was diagnosed with Vanishing White Matter Disease. She resides with her family in NC.... To view the Wall of Fame: https://www.huntershope.org/family-care/wall-of-fame/ To donate to Hunter's Hope: https://www.classy.org/give/114114/#!/donation/checkout #huntershope #newbornscreening #leukodystrophy #krabbe #children #family #genetic #disease #fame

Waiting It feels as though I've been waiting for so long. Sometimes I sense that doubt and fear are trying to invade my mind as I wait for you Lord. As I cling to You during these moments of longing, help me to remember that you are in control. To see full prayer: https://www.huntershope.org/hope-l/prayers-of-hope/waiting/... #huntershope #prayer #hope #jillkelly #prayersofhope

We are currently looking for a stander for a 17-year-old boy and a Leckey Advance Bath Seat (Size 3) for a little girl. Please contact us if you have either of these and are willing to donate. Hunter's Hope Equipment and Supply Exchange Program has been designed to help fulfill the equipment and supply needs of leukodystrophy children, as well as help families, place equipment and supplies that they are no longer using. Hunter’s Hope will cover the shipping cost (48 contiguous states) to place the equipment with the family in need. Equipment Needed or Donated: https://www.huntershope.org/fami/equipment-supply-exchange/

Meet our newest members of the Wall of Fame, Cruz and Ryder Sheffer. They are so handsome! Cruz's baby brother, Ryder, screened positive on NYS Newborn Screening which led to his diagnosis. Cruz is receiving a life-saving transplant today. Please keep them in your prayers.... To see the Wall of Fame: https://www.huntershope.org/family-care/wall-of-fame/ #huntershope #newbornscreening #leukodystrophy #krabbe #children #family #genetic #disease #fame

As I Am I can't stay here anymore. I can't stand this mess of a life. I want to run away from it all. Far away from the pain that entangles me in despair.... To view full prayer: https://www.huntershope.org/hope-l/prayers-of-hope/as-i-am/ #huntershope #prayer #hope #jillkelly #prayersofhope