Huntington Study Group

First group of breakout sessions are underway at HSG 2020 FAMILY DAY!

HSG 2020 continues today with our annual FAMILY DAY SYMPOSIUM - join HD experts and featured guest speakers as they tackle a number of key topics important to the HD community. Sessions begin at 12:00 pm EST and any that you can't attend live will be accessible on-demand later. You can visit all the research posters, sponsor booths, and get updates on some of the current clinical trials in HD. Family Day sessions are free to register and attend, and there's still time to register this morning --> https://bit.ly/HSG2020_register

Our Fall 2020 edition is available now online! Check out the stories on the disparities in access to HD care around the world, including a profile on the work o...f Factor-H, plus the impact that COVID-19 has had on current care for HD patients. Visit the HD Insights web page for more --> https://bit.ly/HD-Insights_Oct2020

Check out the Fall 2020 edition of HD Insights magazine available online now in conjunction with "HSG 2020: HD IN FOCUS" --> https://bit.ly/HD-Insights_Oct2020

Day 2 of HSG 2020: HD IN FOCUS is open, with speaker sessions starting at 10:00 am EST today. Another fantastic day of plenary sessions. And on't forget tomorrow is Family Day! HD families can still register to attend the Saturday sessions for free, along with the Exhibit Hall and Poster Pavilion throughout the event. Register here --> https://bit.ly/HSG2020_register

This year's Peter Como Symposium platform presentations were delivered by Paul Zeun (UCL) "Detection of early neurodegeneration with fluid biomarkers in the HD Young Adult Study" and Dr. Juan Sanchez-Ramos (USF) "Optimizing Nanoparticles for Intranasal Administration of Gene Therapy of Huntington's Disease"

Thrilled to have Sarah Tabrizi from UCL Huntington's Disease Centre deliver this year's keynote for HSG 2020: "Zooming in on Huntington's Disease"

We couldn't have done this without the generous support from all the sponsors of HSG 2020: HD IN FOCUS! We miss seeing all of you in person, but are proud to have you as part of this virtual experience!

A lot of great, engaging content presented so far! We heard from Darren Monckton (Univ. of Glasgow) about "Unstable DNA in Huntington disease: dynamics, consequences and therapeutic opportunities" and from Beverly Davidson (Univ. of Pennsylvania) "Genetic Engineering Related to HD Therapeutics." A number of great topics still ahead this week!

HSG 2020: HD IN FOCUS kicks off this morning. The event space opens to all registrants at 9:00 am EST, and the Thursday plenary sessions start at 10:00 am EST. You can still register --> https://bit.ly/HSG2020_register

HSG 2020: HD IN FOCUS, the 3-day annual meeting of the Huntington Study Group, starts in less than 24 hours! Don't miss out and join the more than 700 people already registered for this fantastic online event. General Sessions on Thursday & Friday, Family Day on Saturday. Use this link to register --> https://bit.ly/HSG2020_register For more meeting details, visit --> https://huntingtonstudygroup.org/hsg-2020/

Annual meeting week is here! DON'T MISS OUT - REGISTER FOR HSG 2020: HD IN FOCUS TODAY! https://bit.ly/HSG2020_register Interactive Presentations. Networking. Over 100 Research Posters. Virtual Exhibit Booths. CME credits. General Plenary Sessions on Thurs & Fri. Family Day Symposium on Saturday. https://huntingtonstudygroup.org/hsg-2020/

KINECT-HD is still seeking participants for the research study of valbenazine for Huntington disease chorea. The study will include approximately 46 total sites in the United States and Canada. For a current list of active Huntington Study Group site locations and to learn more information about the study, go to www.KINECT-HD.org

HSG’s annual meeting is going virtual this October! Join us Oct 29-31 on Intrado’s INXPO platform for a high tech, simulated experience. We may not be able to gather in-person, so we’re giving you the next closest thing that brings you everything you expect except for food! Networking. Posters. Exhibits. Interactive Presentations. CME credits. And more! Visit our event web page for registration details - https://huntingtonstudygroup.org/hsg-2020/

Want to hear more about the KINECT-HD study from one of the researchers working with valbenazine? Dr. Dietrich Haubenberger, Medical Director at Neurocrine Biosciences, was a guest on the HD Insights Podcast. Dr. Haubenberger talks about his work on the KINECT-HD study and his career journey to this point. Go to https://link.chtbl.com/HDInsightsPod to play the episode on your mobile device. For a transcript or to play from your computer, go to https://huntingtonstudygroup.org/hd-insights-podcast/.