National Hemophilia Foundation

May is #MentalHealthAwarenessMonth, and we at NHF know that there is no health without mental health. Join us for a weekly meditation series hosted by NHF's Jhon Velasco, on Facebook Live Tuesday at 1pm EST.

Join us for our Wednesday Webinar which will feature a discussion of maternal and fetal/neonatal risks of bleeding at delivery; counseling preconception pearls; management of delivery to reduce the risk of maternal and fetal/neonatal bleeding, and highlights of postpartum management. This webinar is appropriate for healthcare providers. https://bit.ly/31iQApp

Criteria for gene therapy trials can exclude many with severe hemophilia, says a new study. https://bit.ly/2QacA3X

Cuando se vive con hemofilia con un inhibidor, usted y su familia tienen preguntas y preocupaciones que merecen una atención especial. La serie Viviendo conInhibidores de la NHF, se llevará acabo el sábado 12 de junio de 2021, se centrará en la salud mental de la comunidad de inhibidores. Inscríbase hoy en: https://bit.ly/2RUCLvO

The Third National HTC Patient Satisfaction Survey is now open! Please go here: www.htcsurvey.com to fill out the survey, or return the paper survey you received in the mail. The survey closes on June 30, 2021.

Did you miss the May 12th Wednesday Webinar series? If so you can view it here and listen to Angela Weyand, MD discuss heavy menstrual bleeding and its impact on mental health in adolescent and young adult women with bleeding disorders. https://bit.ly/2Rj9n2w

A new report from the Institute for Clinical and Economic Review found that Hemlibra is comparable or even superior to prophylactic factor VIII replacement therapy. http://ow.ly/BYwf50C37Vz

Patients need health coverage that’s truly affordable. We’re calling on lawmakers to reduce the cost of marketplace insurance plans and protect employees who lack affordable insurance options. Here’s how lawmakers can help http://ow.ly/nyGa50C5nN1

Did you know November is National Gratitude Month? Help us recognize and thank those people in the bleeding disorders community who go above and beyond. Send a personalized eCard to someone you're grateful for. http://ow.ly/FJNc50C5mKT

We all want an end to this global pandemic, and an effective vaccine is a critical part of finding that path. However, there are many unanswered questions on the effectiveness of the vaccine, how it will be distributed, and who will have access to it. Join us on TODAY at 4:00pm EDT to discuss COVID-19 Vaccines: What to Expect, with NHF President and CEO Leonard A. Valentino, MD. Register for NHF’s Friday webinar series here: http://ow.ly/wtAV50C6shU

Sanofi Genzyme has put a voluntary dosing hold on fitusiran following new adverse events. http://ow.ly/GI0s50Cdtwh

El trabajo y la educación remotos han aumentado el tiempo que los adultos y los niños pasan frente a las pantallas. A continuación, presentamos cómo hacer para reducirlo. http://ow.ly/aJXx50C6yj7

After being bullied at school, this 7-year-old decided to take those dark feelings and make something positive with it. Now, his food pantry is flourishing. http://ow.ly/5l5n50C3Use

November is National Gratitude Month and we want to recognize those in the community who made an impact in their communities. Send a personalized eCard to someone you want to celebrate this month. http://ow.ly/D22250C5mr7

As the days get shorter and the weather gets colder, health experts are saying that there will be a rise in seasonal depression. Here's how to handle it. http://ow.ly/daor50C79h9

In 2005, Jordan Shavit, MD, PhD received the NHF-Baxter Clinical Fellowship Program, now the NHF-Takeda Clinical Fellowship Program, and he has been paying it forward ever since. http://ow.ly/QH6750C6s6h

Open enrollment is a great time for you to look at your insurance a little closer and make the decision that is best for your health. www.healthcare.gov/get-coverage/

The benefits of mindfulness can include reduction of pain, and lessening anxiety and stress. Learn more on how mindfulness can help in your daily life here: https://hemaware.org//breathing-easier-mindfulness-techniq