The Quinn Madeleine Foundation

Amazing news for the #Krabbe community, all thanks to the relentless work of Lesa and Brennan Brackbill. You may recognize the name - these are the parents of sweet Tori, #QuinnsListKid number 5. You can get to know Tori and her activist parents through their Disney World wish trip. Well done, Brackbills! http://www.quinnslist.org//tori-meets-minnie-mouse-and-sno

Ever have a family that you look at like oh wow, that's US just a few years ago! Well, that's what the Clausens have meant to us Linzers since we had the absolute honor of working with them and rock star Bryce's Quinn's List trip back in 2019. Their wish was for Bryce to see the beach, and their trip to Florida was scheduled just weeks after Bryce made history with Bryce's Law which mandates newborn screening for Krabbe Disease - an effort that will save countless families th...e pain the Clausens have so gracefully endured. The Quinn Madeleine Foundation is extremely honored to be the steward of such incredible kindness and generosity. Thank you Joel and Andrea, for allowing us to make such a lasting connection with your incredible family. Learn more about Bryce's #QuinnsList trip at https://www.facebook.com/quinnmadeleineinc/posts/1092926250907717 and more about Bryce and his family at their Facebook Group #BrycesBattle at https://www.facebook.com/groups/783052145361791

You guys remember Super Liam, right? Well his absolutely incredible family continues to shine light into our world and they can use our help! Please see below (and note that this family is dealing constantly with illness, loss and grief ... and still manages to make the world a much better place. So grateful for them!) (See comments for images of Liam and this wonderful family.

Hey QMF supporters! Y'all remember when Eileen O'Gara Linzer and Brett Linzer were honored with Sanofi Genzyme's TORCH award back in 2018? Well, we are so thrilled to inform you that another of our #ASMD community - Evren Ayik - was honored this year!! And wow, was it so incredibly well-deserved. Evren, who himself is affected by ASMD, has turned his experience into learning, research and advocacy for all of his peers in the ASMD community. With his recognition, Evren was al...lowed to select non-profit organizations whose mission he supported to receive a portion of the award. And, Evren being the amazing, compassionate soul that he is, selected The Quinn Madeleine Foundation as one of the three non-profit organizations he wished to support. Evren, we are so grateful to you for your work on behalf of the ASMD community, for your continued health and perseverance, and for your support of the QMF mission!