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Locality: Smithtown, New York



Website: www.sarcoidosisofli.org

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Sarcoidosis of Long Island 10.07.2021

I have been very much an advocate for Mental Health not for notoriety at all. I believe it is important to me that people in all communities face the fact that your Mental Health is as important if not more important in your overall health. Just to let you know everything I write on here are opinions, just that, my opinions.... http://lifeasararepatient.blog//mental-health-and-stigma-/

Sarcoidosis of Long Island 26.06.2021

I have spent so many days reflecting on life and where I am now to where I thought I would be. Of course some good and some bad. Life has a way to changing you and if you let it, you could let it beat you down or you can go with the changes and adjust to them or you can give up or fight the changes in your life.... http://lifeasararepatient.blog//life-always-take-turns-yo/

Sarcoidosis of Long Island 19.06.2021

Thank you to those who nominated me for WEGO Health Awards nomination! This is the 6th Year I have been nominated for these amazing awards! The awards I was nominated for are: Advocating for Another, Best in Show: Facebook, Healthcare Collaborator, Patient Leader Hero ENDORSEMENTS Open July 1st Jul 31st This period provides a community-choice aspect of the program. Endorsements are a way to give nominees a visual show of support for a specific nomination, think of it as li...king a post or photo on social media. For instance, if a nominee is nominated for Best in Show: Twitter, and you believe they deserve this recognition, your endorsement is the perfect way to show your support. @strongerthansarcoidosis @stopsarcoidosis @savvy_coop @wegohealth @clarahealth @dufflambros @sarcoidosis_cure @sarcsistaron @sarcoidosisofli @sjledesmas @jessicca.niccole @chasta_lafaith @i_am_shashe_ @catdanse1 See more

Sarcoidosis of Long Island 01.06.2021

Let me start off by saying I know so many say these words. I am not saying they do not know what it means at all. I believe we all have different interpretations of these words; most are close to being the same. Others have a totally different meaning, which is great. What I am going to say is what these words mean to me.... http://lifeasararepatient.blog//what-youarenotalone-means/

Sarcoidosis of Long Island 28.05.2021

I wrote a published article by @thrive I have been very much an advocate for Mental Health not for notoriety at all. I believe it is important to me that people in all communities face the fact that your Mental Health is as important if not more important in your overall health. Just to let you know everything I write on here are opinions, just that, my opinions.... Trigger warning. This article talks about some tough topics including suicide. https://thriveglobal.com//mental-health-from-a-chronicall/

Sarcoidosis of Long Island 23.05.2021

Day 27- #SarcoidosisAwarenessMonth You see one voice and one person can make a difference! Get loud and let your voice be heard! Wow my very 1st television interview at my very first #SarcoidosisAwareness Walk! Now we are @StrongerThnSarc ! https://www.nbcnews.com//-right-to-try-bill-advances-would

Sarcoidosis of Long Island 13.05.2021

Such a beautiful moon tonight. @dianasmallrivera @rosee.savvv

Sarcoidosis of Long Island 03.05.2021

My Patient and Patient Advocate Journey starts in April 2004, in Florida. You see being an avid runner since 7th grade and that was a huge part of my life and opened so many doors including a scholarship to college. So, by the time April 2004 came around I was totally in tune with my body. I was running 4-5 miles a day at the age of 36.... http://lifeasararepatient.blog//my-patient-patient-advoca/

Sarcoidosis of Long Island 15.04.2021

Day 14- #SarcoidosisAwarenessMonth In life we have decisions and choices to make. I have chosen to fight! It hasn't been easy, and it will never be easy to live with chronic #Sarcoidosis. There are nights like tonight when you are in such pain that you can't sleep. Please just because I look fine on the outside it doesn't mean I am fine on the inside. #invisibleillness @strongerthansarcoidosis @savvy_coop @wegohealth @clarahealth @buttahflyk @i_am_shashe_ @catdanse1